Mr Chua Kheng Wee Louis asked the Minister for Health (a) what is the number of Singaporeans currently diagnosed with Spinal Muscular Atrophy (SMA); (b) what are the currently approved treatment options for SMA; and (c) what is the average cost of such treatments before and after any applicable Government subsidies.
Mr Ong Ye Kung: There are, currently, about 40 to 50 persons in Singapore diagnosed with Spinal Muscular Atrophy (SMA). Risdiplam is the only treatment option registered with and approved by the Health Sciences Authority. It costs around $375,000 a year in our public healthcare institutions.
Ministry of Health
22 March 2023
https://sprs.parl.gov.sg/search/#/sprs3topic?reportid=written-answer-13206
Office of the Leader of the Opposition 